You can portray how fiercely brave we have to be in the face of doctors and hospitals who psychologise our devastating disability. We are met with disbelief, arrogance, ignorance and minimisation. One Size Fits All approaches are useless. It’s absolutely wrong that we have to fight tooth and nail to get any meaningful consideration.
I'm so happy about succeeding to start up to knit again. I had yarn and everything for a cardigan, but my brainfog made it hard to understand the pattern. I finally split the reading and understanding of it up over 4 days and got started😊
I really hope, that the break will do you good. Looking forward to hearing from you in the new year❤🙋🏼♀️
I'm doing OK this season. I'm operating at about 50% but I'll take that because I've had months this year that were 5%. Now I mostly don't feel horrendous day to day, so life can be enjoyed, rather than endured. One of the things that has really helped me has been your meditations. I use, and have shared, them regularly. They are most appreciated Thank you. Enjoy your rest. 💕
I hope you get some good rest, Madelleine. I've loved your writing this season and am not at all surprised to see your community grow. You are doing such important work 💕
In terms of my creative projects, I'm nibbling away at novel revisions. That feels like the only verb I can use to describe how I pick it up for a few hours here and there, but it feels so good to be immersed in that world again.
Trying to pick up the threads of my autobiography which I had to put down 20 years ago. Got as far as the 80s now I want to complete it next year before I die.
This time of year is always hard and overwhelming, I hope you manage to rest in a way that helps. Project ideas will be there when you're ready for them! X
Gosh that’s incredible that you’ve doubled your audience this season! What do you attribute that to? Mine is still small but I cherish every single one of them, always say a heartfelt thank you and sprinkle sparkle magic on their picture when they connect🥰
Funny you should ask about the business of letting go. I’ve had to let go of the timelines I’ve given myself in the creation of Migraine & Me: Companion, Guide & Journal. Found it incredibly challenging. I put a lot of (self-imposed) pressure on myself, particularly over the wkend and it made me ill. Really struggling to slow down. Though a few insights have come through in my continued practice to keep on trying
“It’s ok to be in the struggle”
“Build it and they will come”
In what I am creating, there is nothing like it that exists. It is so needed in the world. In the words of rebecca Campbell, it is a lifetimes work not a seasons🧡
I’m really glad to hear you are taking a break, big boy I always do miss you!😘
I think it’s a couple of things: My newsletter was mentioned in Electric Lit, featured on Smallstack, and Crip Time essay got a good handful of new ones and then presence on Notes.
Ooh I know all about self-imposed pressure! I feel like it’s become a full-timr venture for me to let things go or downsize my ambition. I am loving your insights!
My challenge, and others I am sure, is showing up, walking around, talking up all day, every day with a chronic disease that people can't see, therefore if you say I feel so badly today or I am fragile right now, what you hear back is, "Oh. But you look great!" Or an assumotion that I must be making something out of nothing!
Rest, you need you and so do we
Thank you 🙏
Have a good rest Madelleine, see you on the other side. Also very much looking forward to listening to your music when ready :).
Thank you so much, Maria 🌸❤️
List all our symptoms! No one will believe that we have to somehow function despite all of these symptoms day after day, year after year.
So true!
You can portray how fiercely brave we have to be in the face of doctors and hospitals who psychologise our devastating disability. We are met with disbelief, arrogance, ignorance and minimisation. One Size Fits All approaches are useless. It’s absolutely wrong that we have to fight tooth and nail to get any meaningful consideration.
Yes! I wish this part of chronic illness/disability was portrayed more — how we constantly have to fight to be treated right.
Dear Madellaine.
I'm so happy about succeeding to start up to knit again. I had yarn and everything for a cardigan, but my brainfog made it hard to understand the pattern. I finally split the reading and understanding of it up over 4 days and got started😊
I really hope, that the break will do you good. Looking forward to hearing from you in the new year❤🙋🏼♀️
Yay! This makes me so happy to hear! 🌸❤️
Do whatever is best for you, for however long it takes. We'll be here 💖
Thank you, Catherine 🌸
My situation is lengthy and just wow! I love that I've found you! Thank you! ❤️
❤️
I'm doing OK this season. I'm operating at about 50% but I'll take that because I've had months this year that were 5%. Now I mostly don't feel horrendous day to day, so life can be enjoyed, rather than endured. One of the things that has really helped me has been your meditations. I use, and have shared, them regularly. They are most appreciated Thank you. Enjoy your rest. 💕
I’m so glad to hear the meditations are helping you, that means a lot to me!
I hope you get some good rest, Madelleine. I've loved your writing this season and am not at all surprised to see your community grow. You are doing such important work 💕
In terms of my creative projects, I'm nibbling away at novel revisions. That feels like the only verb I can use to describe how I pick it up for a few hours here and there, but it feels so good to be immersed in that world again.
Thank you so much, Clare! And so happy to hear about your novel revisions — and nibbling is a great word 🌸🌸
Trying to pick up the threads of my autobiography which I had to put down 20 years ago. Got as far as the 80s now I want to complete it next year before I die.
Andrea, I wish this so much for you too! I wish you all the best in completing it 🌸❤️
This time of year is always hard and overwhelming, I hope you manage to rest in a way that helps. Project ideas will be there when you're ready for them! X
Thank you so much 🌸❤️
Gosh that’s incredible that you’ve doubled your audience this season! What do you attribute that to? Mine is still small but I cherish every single one of them, always say a heartfelt thank you and sprinkle sparkle magic on their picture when they connect🥰
Funny you should ask about the business of letting go. I’ve had to let go of the timelines I’ve given myself in the creation of Migraine & Me: Companion, Guide & Journal. Found it incredibly challenging. I put a lot of (self-imposed) pressure on myself, particularly over the wkend and it made me ill. Really struggling to slow down. Though a few insights have come through in my continued practice to keep on trying
“It’s ok to be in the struggle”
“Build it and they will come”
In what I am creating, there is nothing like it that exists. It is so needed in the world. In the words of rebecca Campbell, it is a lifetimes work not a seasons🧡
I’m really glad to hear you are taking a break, big boy I always do miss you!😘
I think it’s a couple of things: My newsletter was mentioned in Electric Lit, featured on Smallstack, and Crip Time essay got a good handful of new ones and then presence on Notes.
Ooh I know all about self-imposed pressure! I feel like it’s become a full-timr venture for me to let things go or downsize my ambition. I am loving your insights!
You are great with notes! I don’t let a lot of traction from mine - yet. And I do love your “from the archives”, you do a really great job with those.
Thank you so much, Amber!
May you rest and renew!
My challenge, and others I am sure, is showing up, walking around, talking up all day, every day with a chronic disease that people can't see, therefore if you say I feel so badly today or I am fragile right now, what you hear back is, "Oh. But you look great!" Or an assumotion that I must be making something out of nothing!
🙏☺️
I love that you can express how you feel, even when others are not able to fully receive what you’ve shared🩵
I know I get that too, even though I’m bedbound and clearly ill. It’s not ok. I wish we were believed.