Thank you for showing up with your wisdom as you can Madelleine. Managing emotions is a whole side of pacing I keep being blindsided by, I am mostly good at managing the emotions of being ill, after 15 years of chronic migraine, but managing the emotions of life events as well can swamp my energy reserves right when I need them most. Which creates more emotion - so unfair!
I love that more and more of us are writing about the reality of life with chronic illness. It’s a great question to ask re how many accounts are being read by doctors. One big thing I’ve noted now I’m as well as I am is that there’s been little to no medical interest in my wellness. Leaving me wondering how they can tell us what is or isn’t possible for us outcome wise? Meanwhile I’m still told that what I’ve achieved is impossible. Yet if there is no interest, how can they possibly say this with any clarity? When one of my clients reversed diabetes in 14 months the doctor simply turned around and said “I don’t know how you’ve done it”. No questions, exploration or anything. Something I hear of often in one form or another. Something that has given me a strong sense of purpose is my writing. I started this from a place of severe pain where I could only write one word at a time. Which built to posts every few weeks, now weekly blogs alongside writing books. As challenging as this has been on many levels, I feel this is the fastest way to share the kind of messages and insights we have that will help so many who are suffering and struggling. I’m really grateful for our connection and to have met on here🙏🔹
Wow so interesting that doctors don’t seem to be interested in recovery stories either! Argh, it’s infuriating, so much knowledge goes lost. I love hearing about how writing has given you purpose and how you have built it up from only being able to write one word at a time. I feel you on this one, I too have had to build up my writing muscle, although I still have troubles ‘going deep’ and anything that requires a lot pr concentration or more than twenty minutes of writing because of my illness. Are you working on a book right now?? Do you want to share what it’s about if so?
I’m working on a few. Thank you for asking. The main one is a memoir on my journey in overcoming chronic illness to the point of disability, against all odds. The second is a journal to accompany it. A 3rd is a poetry book I am coauthoring with a published author friend - readers will feel seen, heard & understood in a way that they don’t outside of it. I’m 2/3 in to writing Migraine & Me: Unleashing the Warrior Within. It has been enormously triggering to get this far & required further and deeper healing (which has only seen my health further continue to improve🙏). I very nearly quit writing it. But now i see what I’ve been through as a gift and this book is my gift to migraine warriors everywhere.
Thank you for showing up with your wisdom as you can Madelleine. Managing emotions is a whole side of pacing I keep being blindsided by, I am mostly good at managing the emotions of being ill, after 15 years of chronic migraine, but managing the emotions of life events as well can swamp my energy reserves right when I need them most. Which creates more emotion - so unfair!
Exactly! I find life events the hardest to manage too. And managing emotions takes up A LOT of energy, and not managing them takes up A LOT of energy.
I love that more and more of us are writing about the reality of life with chronic illness. It’s a great question to ask re how many accounts are being read by doctors. One big thing I’ve noted now I’m as well as I am is that there’s been little to no medical interest in my wellness. Leaving me wondering how they can tell us what is or isn’t possible for us outcome wise? Meanwhile I’m still told that what I’ve achieved is impossible. Yet if there is no interest, how can they possibly say this with any clarity? When one of my clients reversed diabetes in 14 months the doctor simply turned around and said “I don’t know how you’ve done it”. No questions, exploration or anything. Something I hear of often in one form or another. Something that has given me a strong sense of purpose is my writing. I started this from a place of severe pain where I could only write one word at a time. Which built to posts every few weeks, now weekly blogs alongside writing books. As challenging as this has been on many levels, I feel this is the fastest way to share the kind of messages and insights we have that will help so many who are suffering and struggling. I’m really grateful for our connection and to have met on here🙏🔹
Wow so interesting that doctors don’t seem to be interested in recovery stories either! Argh, it’s infuriating, so much knowledge goes lost. I love hearing about how writing has given you purpose and how you have built it up from only being able to write one word at a time. I feel you on this one, I too have had to build up my writing muscle, although I still have troubles ‘going deep’ and anything that requires a lot pr concentration or more than twenty minutes of writing because of my illness. Are you working on a book right now?? Do you want to share what it’s about if so?
I’m working on a few. Thank you for asking. The main one is a memoir on my journey in overcoming chronic illness to the point of disability, against all odds. The second is a journal to accompany it. A 3rd is a poetry book I am coauthoring with a published author friend - readers will feel seen, heard & understood in a way that they don’t outside of it. I’m 2/3 in to writing Migraine & Me: Unleashing the Warrior Within. It has been enormously triggering to get this far & required further and deeper healing (which has only seen my health further continue to improve🙏). I very nearly quit writing it. But now i see what I’ve been through as a gift and this book is my gift to migraine warriors everywhere.
This is awesome! What wonderful projects! Looking forward to reading more.
Thank you ☺️🙏