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Krista (she/her/goddess)'s avatar

Pacing literally saved me from the downward spiral I was in. My psychologist taught me how to do it (before I was even properly diagnosed with MECFS).

I too have a lot of privilege. My spouse stepped up in ways I would never have imagined and protects my baseline as if it was his own.

And you’re correct - it’s a tool, not a cure. But if it keeps me from getting worse, it will have to do.

Keep it up!

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Nicola Bal's avatar

I’m honestly finding pacing, the most difficult thing to learn. My husband is my carer—he recently gave up work to set up a food business from home—the feelings I am having over my inability to help him are grim. Recent neuro symptoms have forced the penny to drop, prioritising rest(preferably guilt free) is not a whimsical luxury…my body literally stops functioning—meaning I fall(drop attack) or most recently, lose ability to speak.

I’m a mother to 3 children, it’s a near impossible task to balance.

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