The Bed Perspective

The Bed Perspective

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Chronic illness life

I stay sane living with severe chronic illness using these journaling techniques
Having a good relationship to yourself and being honest about your true feelings is immensely helpful when dealing with chronic illness. These…
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Madelleine Müller (she/her)
20
Nostalgia can be both painful and a balm when living with chronic illness
When I became ill with ME/CFS, lost my career, my income, my friends and got to meet the paternalistic and demeaning welfare system I viscerally…
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Madelleine Müller (she/her)
18
Why chronic illness pacing is political
I realised how my privilege as someone with resources and able-bodied parents who can provide me quality care allowed me to pace diligently.
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Madelleine Müller (she/her)
36
I’m writing ‘chronic illness’ on my CV — we’re that awesome!
I found myself talking about how robust and awesome my skill set is because of having lived with chronic illness for so long.
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Madelleine Müller (she/her)
21
There is another kind of loneliness we rarely talk about
And this gravely affects people with chronic illnesses and disability.
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Madelleine Müller (she/her)
39
This thing doctors say still triggers me
I know that he meant to calm me down with his words, but it had the exact opposite effect. Once again, my pain was invalidated.
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Madelleine Müller (she/her)
49
Facing relapse and the dread of ‘emptinitis’
Emptinitis is what I have dubbed that eerie feeling of being empty inside, like a washcloth wrung too tight, not a drip escaping from it.
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Madelleine Müller (she/her)
21
Chronic illness burnout is real and we need more research
There is a lot of research about burnout among doctors and health care workers but not a lot about burnout in patients living with a chronic illness.
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Madelleine Müller (she/her)
33
“Don’t let illness define you,” they say. But this could be problematic.
We are often told to not let illness define us. But is this always possible?
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Madelleine Müller (she/her)
48
Dealing with chronic illness isolation by becoming my best friend
Isolation due to chronic illness is incredibly traumatic and soul-wrenching. I deal with it by becoming my own best friend. Here are my practices.
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Madelleine Müller (she/her)
24
What it’s like to live with severe ME
I have lived with ME (also known as ME/CFS) for over twelve years now. In 2017 it turned severe. Here’s what it’s like.
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Madelleine Müller (she/her)
36
How my dreams are shaped by chronic illness
Chronic illness has changed the shape of my dreams entirely, both because of the traumatic event as well as neuroinflammation.
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Madelleine Müller (she/her)
7
© 2025 Madelleine Muller
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