The Bed Perspective

The Bed Perspective

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Nostalgia can be both painful and a balm when living with chronic illness
When I became ill with ME/CFS, lost my career, my income, my friends and got to meet the paternalistic and demeaning welfare system I viscerally…
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Madelleine Müller (she/her)
7
Why chronic illness pacing is political
I realised how my privilege as someone with resources and able-bodied parents who can provide me quality care allowed me to pace diligently.
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Madelleine Müller (she/her)
36
When doctors turned their backs on us, I wrote this song
I hadn’t met any doctors who would listen or understand, I had felt ostracised from my present (able-bodied) community, we were neglected and forgotten…
16
Creating with a disabled body in a perfectionist world
Disabled artists are not broken versions of abled artists. We simply create differently, with different pacing and limitations. We need to shift the…
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Madelleine Müller (she/her)
23
I’m writing ‘chronic illness’ on my CV — we’re that awesome!
I found myself talking about how robust and awesome my skill set is because of having lived with chronic illness for so long.
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Madelleine Müller (she/her)
21
There is another kind of loneliness we rarely talk about
And this gravely affects people with chronic illnesses and disability.
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Madelleine Müller (she/her)
39
How I created my album from my bed and wheelchair
And save the date! My debut single is out 12th May.
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Madelleine Müller (she/her)
45
I’ve had to ditch these writing rules since becoming chronically ill
Following writing rules is not always possible when living with chronic illness. Here are the ones I’ve had to ditch.
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Madelleine Müller (she/her)
27
We aren’t invisible, we are made invisible
It is Women’s International Day on 8th March. Let’s talk about women’s health and how we are made invisible
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Madelleine Müller (she/her)
34
Anger can be vital in chronic illness life
Anger can be an important tool and GPS that tells us when we find something happening to us unjust or unkind. It can also pave the way for gratitude.
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Madelleine Müller (she/her)
37
Learning to trust my voice again after medical gaslighting
I didn’t feel I could speak my truth on social media, I was anxious every time I pressed post, even writing an email made me anxious. These were partly…
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Madelleine Müller (she/her)
17
My energy compassion Scale: Deciding when and how to create when living with chronic illness
When I gauge whether I’m ready for creativity I don’t only look at my energy levels, I look at whether it’s compassionate for me to create in this given…
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Madelleine Müller (she/her)
19
© 2025 Madelleine Muller
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